WEBINAR — Sep 15, 2026

Financial Distress, Welfare, and Entitlements at the End of Life

Summary:

This webinar will provide an overview of recent research on financial distress experienced at the end of life and its proposed mitigations. You will hear from Nicola, a leading researcher in this field, presenting her work in this area, followed by reflections from Sandra, a social worker who supports families in navigating the complex benefits system. There will be interactive elements built in throughout to embed and enrich your learning.

Please click here to download the handout of this session.

Useful resources related to this webinar:

1. A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness

2. The Cost of Living: the financial impact of terminal illness (by Marie Curie)

3. Latest research projects funded by Marie Curie

4. Turn2US

5. Improving terminally ill people's access to Special Rules (by Marie Curie)

6. Dying in Poverty 2025: Deaths in poverty and fuel poverty -  and what needs to change (by Marie Curie)

7. Inquiry into the financial impact of a terminal diagnosis - Report of the All-Party Parliamentary Group for Hospice and End of Life Care

9. "It's a nightmare scenario" - death, dying and financial hardship (by Hospice UK)

10. Requesting a BASRiS form

11. Benefit Calculator (by Marie Curie)

12. Guidance on Public funds (by GOV UK)

13. Financial Support & Grants (by RABI)

14. Help with energy bills if you're affected by a terminal illness (by Marie Curie)

15. The Take-up Study

16. Disability Benefits Policy Evaluation: Special Rules for Terminal Illness

Key speakers:
Dr Naomi Richards (Chair), Director of the End of Life Studies Group, the University of Glasgow
Dr Nicola White (Speaker), Principal Research Fellow & Deputy Head, Marie Curie Palliative Care Research Department, University College London (UCL)
Sandra Cayzer (Discussant), Senior welfare adviser , Heart of Kent Hospice

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