We’re excited to share that we are developing a patient and public involvement (PPI) group to support our work.

We're doing this as we believe the voices of people living with advanced illness as well as their family members and other close persons, are essential for shaping research in this field. We aim to form a group consisting of about 8 people who will meet about 3 times per year to provide feedback on research ideas and the work of the network more generally. We will compensate people for their time.

We’ll start with a friendly introductory information session, where you can learn more about what PPI is, what being involved might look like, and ask any questions you may have. There’s no prior experience required - just an interest in contributing your voice and perspective.

If you are interested as a person with lived experience, or someone who has cared for someone with an advanced illness, or know someone who might be, we’d love to hear from you.

Please get in touch by emailing MAINevent@ed.ac.uk. We’ll be happy to share more about this opportunity.